Thursday, February 11, 2010

Glimpses

We are exhausted. Filled with emotion. Agonizing the road ahead of us. So much information. Not enough energy. I will update tomorrow on our treatment plan. Our crazy, crazy treatment plan. Just a small glimpse of my amazing son...on our way home from the hospital he was crying over his pain and for a few moments he was quiet. Then he said "mom I know someone who has felt more pain than I have" "who baby? (honestly I expected him to say Ben 10 or something of the likes)" "Jesus." I am not worthy to be his mom. I love him.

12 comments:

  1. What an amazing boy. And you are amazing parents. We sure love you guys and keep praying for you!

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  2. Doesn't surprise me ONE BIT that he would say that. When I was over on Wednesday, I asked him how he was feeling & even though he said he wasn't feeling very well, it wasn't like he was complaining. He told me that he knows he is sick so that he can be stronger later. He is one amazing boy & will continue to amaze us all!

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  3. What an example for all of us. Such an inspiration. I am praying for you and your Super Spence.

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  4. That is so "Spencer." So love him. He is MY hero!

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  5. That takes my breath away. My daughter Devyn is in his school class and misses him so much. We pray for you every day. What a strong amazing boy.

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  6. My heart aches for you all. It's so hard to feel helpless when someone is suffering in front of you. He has showed such strength and courage already and that will continue to grow as the hard road ahead gets harder. Love you and pray for you always.

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  7. So sweet. He's got it all figured out...

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  8. I came upon your site when doing some rhabdo research. My son Mike was diagnosed 13 months ago with stage 4 aveolar rhabdo. He was 16 when we found out. Mike responded well to the chemo and radiation. In december he had his final treatment scans and they found no evidence of disease. He is almost 18 now, and was accepted to Carnegie Melon University.Mike was treated at Johns Hopkins. They have come a long way with treatment. I hope for the best outcome for Spence. If you want to contact me I'm at argioia@comcast.net

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  9. He is one amazing kid! I think Heavenly Father prepared him for this struggle your family is going through.

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  10. Spencer also said that he knew Jesus has felt every pain that he is going through and I know he takes solace in that fact. After a tough, long day at the hospital and in and out of anesthesia and multiple IV's, he still was so sweet. He told me that he loves me so much as I was helping him out of the car. Then when I got him ready for bed and tucked him in, I was leaving the room and he said, "Dad, you're the best dad in the whole world". I am the luckiest dad in the whole world.

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  11. To know Spencer is to understand the scripture that admonishes us to become like little children. To have such faith and assurance is inspiring to us prideful adults. We love you Spencer!

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  12. I was leaking some tears while reading your blog. Ruby said, "I know why you're crying mom. It's because of Spencer. I just said a prayer for him." It's amazing what kids like Spencer and Ruby can teach us.

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