Friday, April 2, 2010
Today marks two months that Spencer was diagnosed. Two months ago we sat waiting in the emergency department for CT results. Two months ago I learned the word Rhabdomyosarcoma for the first time. Two months ago I saw the tumor on the scan results. Two months ago our life completely changed. In just two short months my healthy little boy has been through a biopsy, bone marrow aspirate, surgery to have a Broviac central line placed, several CT scans, MRI's and bone scans, 18 doses of chemotherapy, four weeks of radiation, a ten day stay in the hospital because of dehydration and intense pain, and NG tube, and NJ tube and five days of TPN. These are only the big things he has experienced. I haven't mentioned our day to day maintenance routine. What a tough boy. His spirit is so strong and his bravery amazes me. Quite honestly, the last two months have felt like five years. I think about all of the things we have gone through in a relatively short amount of time and just wonder what the next 12 months hold for us. I am pretty terrified to even think about it and cannot even imagine the aging Nate and I will do over this next year. The last two months have been harsh on us, on me at least. Here are some pictures of Spencer's NJ feeding tube system. It is pretty cool and he has put on a pound and a half since chemo on Wednesday! It is also helping to regain his appetite. Today at Walmart he asked me to get, strawberry milk, honey roasted peanuts, taco flavored Doritos, strawberry banana yogurt, pizza rolls, kool aid squeezables, and sour Skittles! He may not eat any of these things but I am just so excited that he even wanted to try any of these, this is a huge step. He tried a pizza roll but the taste just was not right to him, poor guy. He has been eating licorice and we will try some of the other treats later tonight. Yesterday in the mail he got the coolest shark shirt from his very best friend in the whole entire universe, Gabe. Spence LOVES sharks! Here is a picture! Thanks guys! He loves it!
Posted by Gooches at 6:22 PM