Tuesday, March 9, 2010

"Ordinary Day"

Today is like any other "ordinary" day in the Gooch household (yes Gooch is really our last name). We wake up and get the kids ready to drop Belle and Gavs off at Grandma Suzi's then off to radiation, a quick lunch and an afternoon kickin' it in the oncology clinic at PCMC (Primary Children's Medical Center) for chemo. By the end of the afternoon, and sometimes early evening we head home for dinner, family time and then bed time, to start all over again the next morning. I feel today that we are finally going along following our new routine. I have been letting Spence "eat it up" and order whatever he wants but today will be the last day of that. His eyes are definitely bigger than his stomach and he is not eating even half of what he orders. Today he ordered a grilled cheese sandwich, french fries, mashed potatoes and gravy, fruit, strawberry milk, and a doughnut with sprinkles. I think he actual ate half of his sandwich, maybe two french fries, a few bites of mashed potatoes, and a quarter of his milk. He PROMISED to eat the rest of it for dinner. He didn't even touch his fruit or doughnut. Silly guy. I am going to pay more for his food than his medical bills!
His hair is totally falling out and we have been hoping to hold on until the head shaving party but I don't know if we can. He doesn't, however, want us to shave it now. He is determined to hold on as long as he can but it is so patchy. He wore one of his cool Utes hats today but it started getting itchy. I know I keep talking about his hair but it's the most emotional thing happening at the moment, and for him, what he has been fearing the most. I am going to do a post once he is "bicked" of his hair throughout the years. It is definitely more emotional than I thought it would be. I think, also, it is a constant reminder of what we are battling, and that is hard. I found a bumper sticker online the other day that I really want to get, it says "cancer sucks". I don't think it can get any more honest than that!

10 comments:

  1. you won't have to bic it... you can shave it soft and, soon enough, it will be as smooth as can be. but when it grows back... it's as soft as chick-down. that's kind of fun. =)

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  2. I know we've never met in person, but I have read several of your comments on the Happy Mommy blog. I'm so sorry to hear about Spencer's battle with cancer. He and your entire family will be in our thoughts and prayers.

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  3. It's sad that you even have to get use to a new normal. I really hope his hair will hang on for the shaving party.

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  4. Poor kid...I know how much his hair & the shaving party mean to him...if he can't hold on, it will still be fun to see everyone that shaves their head in support of him! He does have the best hair, it will be fun to see pictures from over the years!

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  5. I am heart broken for this sweet little boy! Please know that your whole family continues to be in my thoughts and prayers. Cancer is such an ugly beast...i've only witnessed it with my grandpa who passed away last september. I can only imagine how hard it is with your own child.

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  6. I'm just so sorry for everything u and your family go thru...........Stillpraying down South

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  7. My grandpa tried to donate on your link at the top and it wouldn't accept his credit card. he went to the bank to do it and they said the account was closed. So you know whats going on?

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  8. allison, i just taked to my sister in law who set it up and she is looking into it. As for the online credit card, it is through paypal, so you have to have a paypal account. tell him thank you so much and i will let you know what is going on with the zions as soon as she lets me know! sorry and thank you!

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  9. ALLISON, it should be all fixed. sorry.

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  10. I am sure that is so hard for all of you. Like you said it is a constant reminder of whats going on. We will keep you in our prayers and hopefully he'll be able to hang on until the party. We will be there for sure!

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