Wednesday, September 15, 2010

We're Baaaack

This picture looks kind of freaky but an echo is just an ultrasound of the heart. It is pretty low key and fast.
Always the jokster!

Today I miss my little Linus. Gavin carries his blanket around everywhere he goes. He is happy if he has his blanket. Spence was reading a book and mentioned Linus from the Peanuts comic and I thought, "Oh, I miss my babies at home". It has been quite sometime since I have been away from Gavin, and it is hard for me to have other people drop off and pick up Isabelle from school. I am, however, really loving this alone time with Spencer. He becomes a different person when it is just the two of us. He lets go a little bit and becomes my baby. It is hard to let your kids get older and have them gain their independence, but it is nice to know they still need their mom. We watched Aladdin today, which has become one of his renewed favorites. He used to watch it non stop when he was about Gavin's age. We both watched and sang along and it was a fun time. He built robots with his Magnext kit while I knitted him a beanie and we just talked. What a great opportunity for us to have these moments. I love them. Every one of them. I love being his mom and watching him blossom and become an incredible human being. He is strong and full of faith and there is not a better kid out there. It is hard for me to fathom what this kid has gone through in the last seven months and I was there for it all. Tough as nails. This is week 28 of 54 weeks. This is a significant week. This is the first week that we have more weeks under our belt than we have left! This is a spot I never imagined getting to. We started the day with some hydration and then on to cardiology for an echo to make sure his heart is still going strong from all of this chemo, and two chemoes. He will get his last chemo of the day for an almost midnight snack at 10:45. This chemo is doxorubicin. This is probably the monster of all his chemoes thus far. It is red and it makes his urine red. It runs for 48 hours. 48 HOURS! of poison running through his veins. Today I learned that folic acid is dangerous for cancer patients. The way it metabolizes and feeds fast growing cells (which cancer cells are) can increase the harmful cells. The body is just a completely fascinating work of art. All of those who have taken care of him today have commented on how great he looks. That is always so reassuring. It makes me happy. I will keep you updated on our stay here this week and try to have some more flowy blogs than this choppy non flowing journal entry.


  1. Oh my goodness, I see YOU in the first picture of Spence. How he looks like you in that one!
    (Nate is all picture # 3)lol!xoxo

  2. Red urine! freaky!I just love that this is week 28 of 54, how amazing. So many experiences and so much growth over the last months. Love you guys!

  3. Spencer you look really good. I can't wait to see you in person soon! Kevin had the red stuff too! Hang in there champ! We love you.

  4. Morgan loved the picture with his silly glasses on!He said his cousin is funny!He looks great in those pics! u guys keep hangin in there! love ya and see ya soon!!