Friday, May 14, 2010
We have had kind of a crazy stay here this go around. Spencer's bacterial and yeast infection have not gone away and "the team" along with advice from the Infectious Disease team has determined that the only way to get rid of it is to replace his central line. The bacteria and yeast have formed their own colonies on his line and have secreted their protein barriers around themselves protecting them from the antibiotics and anti fungals. Today he will have the line removed. We will need to wait a few days for the infection to clear and then they can replace it. He is pretty bummed about it all, but he is a strong kid, he will be okay. His ANC is low so there is a NO VISITOR policy right now unless otherwise notified. The unit will not even let anyone into his room without our permission. This has been kind of a depressing visit for him. Hopefully we will be out of here soon and he can start to feel back to normal and get back on track for some home tutoring academics. Tonight is Gavin's family birthday party and it is just so sad that we are not all together. For all those who know me well, know that I tend to go overboard with parties and dinners. This year I just feel so blah, and I don't want to jip Gavin out of a first birthday. I think I feel like I am jipping myself out of his first birthday, what does he know, he's a baby. It is just a different kind of year for us, and it is slowing creeping along. Nate will be taking the weekend shift and even found a substitute to teach his church class on Sunday so that I can have as much time with the kids as possible. He is wonderful. Spencer will enjoy the time with his dad this weekend. I am learning to handle this new schedule. I am learning not to feel hurried about getting out of here. I am learning not to cancel any activities we have planned and just work around them. This is our life now. It is different and hectic but we are learning to make it work for us. It has made this hospital stay more controllable. I am going to take the weekend off of blogging, and enjoy my kids. I am even leaving my computer here at the hospital so that I won't even have the temptations!
Posted by Gooches at 9:09 AM