Wednesday, October 20, 2010
I have MAJOR blogging to do to catch up. I have a ton of pictures from the beginning of the month to now. Before I begin on catching up I wanted to let you all of a huge miracle that took place yesterday morning. To preface, most of you know that Spence has a feeding tube. He WILL NOT put anything in his mouth. Not water, not candy, not ANYTHING. He made the decision that he will not eat until his tastes comes back after treatment because he does not want to ruin the taste of anything. Although he has made the decision to only eat with a feeding tube, he still FREAKS out when he has to get it replaced. Like 3 people have to hold him down and he screams bloody murder freak out. Needless to say, it is not a fun experience for any of us. I have been so fed up with this tube that it is only referred to as the "damn tube". Because it was moved to his stomach instead of his intestines, it has a higher chance of falling out, thus, being replaced more often. Fun. Yesterday morning he threw up tons. The tube came right out. There was frantic screaming on his end. Frantic. Screaming. Fun. It was Isabelle's birthday and I just had so much to do. Getting the tube replaced was not an invited change to our schedule. I once referred to the tube by my terms, and begged him to just eat so that we wouldn't have to keep going through this. THIS IS WHERE THE MIRACLE BEGAN! Instead of quickly responding "no way" he sat and thought about it. He didn't answer, but the hesitation was more than we have been able to get out of him thus far. So I did a little nudging, and daddy did a little bribing ($450 into Spencer's personal bank account for eating regularly). This pushed his decision. He was willing to try a bite of lasagna that night for dinner! UM WHAT? ARE YOU FREAKING SERIOUS CHILD? After all of the fighting he was ready. He drank some water that morning, had a teeny bite of a lasagna noodle that night and drank a decent amount of rootbeer. MIRACULOUS! We decided to take it slow and stick with high calorie smoothies. He decided that he was okay with the rootbeer flavor so for today he is drinking a rootbeer smoothie with vanilla ice cream, his feeding tube formula, protein powder, half and half and rootbeer. He said it tasted almost normal! YAY! I gave him an hour to drink a cup and I will give him more throughout the day. He said in the car today "dad was right, eating makes life easier!" then he said "I just said a prayer, mom, thanking Heavenly Father for helping me get my taste back a little". Sigh. Sweet boy, miracles and food. Slowly but surely. Please pray for him to continue to get his taste back and eat "real food" again!
Posted by Gooches at 12:20 PM